A Spinal Cord Injury (SCI) frequently causes severe, life-long disability, with affected individuals requiring assistance with mobility and activities of daily living. Individuals with SCI experience a variety of medical conditions related to their injuries, such as pressure injuries, neurogenic bladder and bowel, pain and spasticity, among others. Thus, long-term care for people with SCI is associated with significant healthcare costs. Due to the severe consequences of SCI, it is important to collect and store diverse, high-quality data, including medical, functional, and social aspects. In the United States (US), the National SCI Database began data collection in 1973 at a total of 28 centres. With 14 centres presently involved, the database captures data from an estimated 6% of new traumatic SCI cases each year. The database enables examination of the longitudinal course of SCI, with the longest patient follow-up exceeding 40 years. Operating all over Europe, the European Multicentre Study about Spinal Cord Injury (EMSCI) collects data from 19 European centres. Meanwhile, new registries are being developed in countries across the world including Canada, Australia, Austria and other countries.

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